ACR, NACDD Work to Implement Lupus State Plans
Thursday, February 9, 2017
The American College of Rheumatology (ACR) is one of two organizations to receive funding as part of an effort by CDC to Develop and Disseminate Programs to Build Sustainable Lupus Awareness, Knowledge, Skills and Partnerships, designed to improve health outcomes and health-related quality of life among individuals with lupus. As part of its CDC grant, last year the ACR partnered with NACDD to convene three state workshops to develop Action Plans to promote lupus education and awareness, improve early diagnosis and access to care.
This year, the ACR again partnered with NACDD to fund two implementation grants to the Georgia Council on Lupus Education and Awareness (GCLEA) and the Big Bend Rural Health Network. GCLEA developed a Lupus Action Plan, which, together with its statutory mandate to investigate the level of education and awareness, will implement recommendations from its Action Plan to increase awareness of the signs and symptoms of lupus and what to do if diagnosed with lupus among school nurses and persons living in Southwest Georgia. This will be accomplished through a partnership with the Chronic Disease Prevention Office in the Georgia Department of Health, the School Health Nursing Office and the Southwest Georgia AHEC to deliver education and awareness training about lupus to the 1,600 school health nurses in Georgia, as well as an awareness campaign about lupus to college students in the 38 county Southwest Georgia AHEC Service Area.
The Big Bend Rural Health Network (BBRHN) will implement recommendations from its Plan to increase awareness of the signs and symptoms of lupus and what to do if diagnosed with lupus. This will be accomplished through a community-based outreach and educational campaign focused on the faith-based community. In addition, BBRHN will identify individuals in the Big Bend AHEC service area of 14 counties who suffer from lupus and who are without a medical home, and has formed a partnership with the University of Florida’s Division or Rheumatology and Immunology and the Lupus Support Network, which will provide assistance in obtaining primary care and specialty care health services regardless of the patient’s ability to pay.