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National Program of Cancer Registries Collects Data to Support Local Cancer Registries

Tuesday, April 18, 2017   (0 Comments)

Data collected by local cancer registries helps to understand and address the cancer burden more effectively. CDC’s NPCR program provides support for states and territories to maintain registries that provide high-quality data. Data are critical to find out:

  • Who has cancer?
  • What cancer programs are working?
  • Where we need to go next to lower the rates of cancer?

Measuring Progress, Targeting Action

  •  CDC supports central cancer registries in 45 states, DC, Puerto Rico and Pacific Island Jurisdictions. Data collected by these registries represents 96 percent of the US population. NPCR captures more than 1.6 million new cases of cancer each year and supports data collection on the occurrence of cancer; the type, extent, and location of the cancer; and the type of initial treatment.
  •  NPCR data are critical to cancer planning and control at the local, state, regional and national level. Data are used to improve clinical care, deliver interventions, identify and address health inequalities, and monitor public health programs. 
  • NPCR data, with NCI’s SEER program data, provide the official federal cancer statistics for incident cases and cancer deaths in the country.

Increasing Accessibility of Cancer Data

  •  NPCR data are widely disseminated, including a new public use data set. 
  •  CDC recently released a new application, United States Cancer Statistics: Data Visualizations, a user-friendly product that allows cancer surveillance data to be directly and more easily accessible by public and cancer control planners.

Leading Innovation

  •  CDC is working to enhance the use of NPCR cancer registry data through additional data collection, expanded electronic reporting, and testing innovative public health applications:
    • Partnering with FDA to develop a Natural Language Processing (NLP) Workbench to provide access to open source NLP and machine learning tools.
    • Developing and supporting software tools critical to cancer registries for electronic data exchange and interoperability with pathology laboratories, hospitals, and ambulatory healthcare providers; and
    • Providing leadership guidance to Electronic Health Record vendors and state cancer registries for Meaningful Use electronic cancer reporting from ambulatory healthcare providers.

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