NACDD Action on Arthritis

NACDD’s Advancing Arthritis Public Health Approaches Project works with the CDC Arthritis Program and national partners to expand dissemination, delivery of, and access to arthritis-appropriate, evidence-based interventions (AAEBIs). The project also provides assistance to state arthritis programs to expand state-based efforts. Strategies include: working with partners to disseminate arthritis-appropriate, evidence-based interventions at low or no cost to employees at worksites, and working with American Physical Therapy Association chapters and physical therapy clinics to disseminate the Walk With Ease program.

NACDD Action on Lupus

NACDD and the Lupus Foundation of America, with funding from CDC, developed the first-ever National Public Health Agenda for Lupus 2015 -- A Blueprint for Action to prioritize a coordinated and multifaceted public health approach to lupus. The American College of Rheumatology, funded by CDC, collaborates with NACDD to develop sustainable strategies to support and build partnerships between State Health Departments and community-based organizations on lupus. Two community-based organizations were funded to implement select recommendations from state-based strategic plans.

The Big Bend Rural Health Network has developed an effective partnership with the Florida Chronic Disease Director that includes a lupus subcommittee to the Chronic Disease Coalition, a lupus module in the 2019 BRFSS, and a compilation of hospital discharge and death data for addition to the Florida Charts website. The Georgia Council on Lupus Education and Awareness has also built an effective partnership with the Georgia Chronic Disease Director that includes a lupus module in the 2019 BRFSS and a pilot telemedicine project that evaluated practitioner and patient attitudes about the use of telemedicine for a lupus consultation.

Both grantees are participating as part of a workgroup comprised of the ACR/The Lupus Initiative, NACDD, and pediatric rheumatology fellows in a School Nurse pilot project that provides a training component on lupus to school nurses, a Lupus Care Plan for students with lupus, and a Child to Adult Transition Care Plan. Those plans are being evaluated by school nurses through June, with final revisions to be made by the workgroup during the summer of 2019, with potential national availability in 2020.